"We'll never know if the actor consented to the documenting of his condition by his family Once upon a time, I interviewed a man whose beloved family member had been diagnosed with Alzheimer's disease. Without an ounce of self-pity, I recall him noting how it was a diagnosis that had been received equally, almost more acutely, by the loved ones around that person."
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An Alzheimer's diagnosis affects both the diagnosed individual and their loved ones, often touching family members as deeply or more acutely than the patient. Family members may observe and document changes in the person's condition, which raises ethical questions about consent when the subject cannot fully authorize public sharing. Consent for documenting and publicizing a public figure's decline can remain unknown. Relatives' responses to diagnosis can be pragmatic and devoid of self-pity. Decisions about recording, sharing, and preserving images or accounts have lasting implications for privacy, legacy, and dignity. Media channels commonly invite audiences to follow updates about such cases.
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