""I remember sitting in the ultrasound room," Mornhineway, 30, tells TODAY.com. "Our hearts dropped. They said there was nothing to be done. Most people terminate.""
""All we knew was that our hearts were broken," she says."
""It made me wonder if that was something we could do," Mornhineway recalls."
Mornhineway and her partner Andrew Ford received an anencephaly diagnosis at nearly 15 weeks, meaning major portions of the brain, skull and scalp would not fully develop. The condition is rare, affecting about 1 in 10,000 U.S. newborns. The couple experienced immediate shock and grief. They named the baby Haven. Mornhineway searched for options and encountered a Grey's Anatomy storyline about carrying an anencephalic pregnancy to allow organ donation. Ford initially dismissed the idea but later embraced it, believing that their devastation could be transformed into something meaningful. The couple moved forward with their decision amid heartbreak, love and hope.
Read at TODAY.com
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