On May 7, the Department of Health and Human Services announced a data-sharing partnership with the CMS and NIH aimed at studying autism. Utilizing data from Medicare and Medicaid, the initiative will analyze claims information, medical records, and data from consumer wearables. While officials emphasized adherence to privacy laws, concerns about data handling persist, especially after prior plans for an 'autism registry' were scaled back amidst public backlash. The joint effort aims to track autism diagnosis trends and health outcomes over time, focusing on transparency for affected families.
We're using this partnership to uncover the root causes of autism and other chronic diseases...to deliver the honest answers families have waited far too long to hear.
The idea was first brought up during a NIH Council of Councils meeting on April 21...Bhattacharya discussed the NIH's intention to study autism.
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