"For more than three years, I've lived with long COVID. The dizziness never leaves. I can't drive more than half an hour without starting to get nauseous. Any strenuous activity - mental or physical - leaves me with post-exertional malaise that feels like a hangover the next day. I've learned to adapt and find gratitude for many things, but life remains an exhausting calculus of rationing energy across work, chores, and my kids."
"Instead of being an ally, Kennedy shut down the Office of Long COVID Research and Practice, gutted the National Center for Chronic Disease Prevention and Health Promotion, and derailed National Institutes of Health (NIH) trials and studies. After public pressure, he restored some RECOVER grants, but the broader system remains in ruins. Meanwhile, Kennedy staged a hollow "roundtable" promising a "sustained effort," while offering no new funding, no roadmap, and little patient involvement."
A patient has lived with long COVID for more than three years, experiencing persistent dizziness, nausea during driving, and post-exertional malaise that leaves hangover-like symptoms the next day. Life requires rationing energy across work, chores, and childcare. An estimated 20 million Americans have long COVID, with symptoms such as brain fog, fatigue, joint pain, heart palpitations, dizziness, and loss of taste or smell, causing chronic disability for many. The HHS secretary closed the Office of Long COVID Research and Practice, gutted the National Center for Chronic Disease Prevention and Health Promotion, and derailed NIH trials and studies. Some RECOVER grants were restored after public pressure, yet the research system remains damaged and patient involvement was minimal.
Read at Truthout
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