Singer Jesy Nelson reveals her twins are unlikely to walk after diagnosis: 'I literally feel like my whole life has done a 360'

""We were told that they're probably never going to be able to walk, they probably will never regain their neck strength, so they will be disabled, and so the best thing we can do right now is to get them treatment, and then just hope for the best. Thankfully, the girls have had their treatment, which you know, I'm so grateful for because if they don't have it, they will die.""

""She said the diagnosis was made after her mother noticed the twins 'were not showing as much movement in their legs as they should be', and they later began to struggle with feeding. Nelson said when she first went to see doctors they told her 'don't worry, it's fine', before the eventual diagnosis of SMA1, which the NHS says causes muscle weakness, movement problems, problems with breathing and swallowing, muscle tremors, and bone and joint problems.""

The singer's twin daughters were diagnosed with SMA1 after their mother noticed reduced leg movement and the babies began to struggle with feeding. Initial medical visits produced reassurances before the SMA1 diagnosis was confirmed. Clinicians warned the twins may never walk or regain neck strength and that they could die without treatment. The twins have received treatment that is potentially lifesaving. The family faces endless hospital appointments and intense care. The situation has caused deep emotional distress and a sense of grieving for an expected future while the family expresses gratitude that the babies are alive and receiving therapy.

Read at Irish Independent