Finley, a 14-year-old from Battlesbridge, suffers from a rare condition preventing him from consuming lipids, necessitating injections into his heart as a treatment. This has been his routine since age four, evolving to twice weekly as he grew. His case is so unique that doctors are considering publishing findings. His mother, Rhys, remarks on the emotional challenges their family faces, balancing the reality of Finley's condition with maintaining a sense of normalcy, such as participating in cooking and celebrating birthdays despite being unable to eat.
Finley has a rare digestive condition where his body cannot tolerate lipids, requiring him to have fatty compounds injected directly into his heart weekly.
Dr. Manas Datta described the situation as 'horrific', noting that Finley reacted to food from infancy, making it an unprecedented medical case.
Finley's mother, Rhys, expressed the emotional toll it takes on the family, acknowledging that while Finley appears happy, he psychologically struggles with his condition.
Despite his inability to eat, Rhys ensures Finley experiences the social aspects of food, such as cooking and celebrating birthdays, maintaining a sense of normality.
Collection
[
|
...
]