#dravet-syndrome

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Public health
fromwww.bbc.com
4 days ago

Parents of gravely ill child refused respite care

Parents of a two-year-old with life-limiting Dravet Syndrome were denied respite care despite requesting a few hours weekly support for 24-hour monitoring needs.
Fundraising
fromwww.bbc.com
4 months ago

Half marathon hula hooper

A fundraiser hula-hooped while running the Royal Parks Half Marathon to raise over 500,000 for Dravet Syndrome UK, setting a world record.
fromABC7 San Francisco
5 months ago

Bay Area mom fights to keep epileptic daughter in school after district can't accommodate her

I think it's different, but we're still in the same situation: still stuck at home, and not with her peers, and not getting education. They don't care that she's not at school,
California
fromwww.bbc.com
6 months ago

Shoulder injury forces Surrey bowler Dunn to retire

Unfortunately, I've been struggling with a shoulder injury for the last 14 months now, I had a surgery in January, tried my best this year to come back, took multiple injections, but unfortunately, we've reached a point where we're kind of out of options medically. For me, the club is, and has been, an absolutely massive part of my life for a long time and it will be for a long time. I don't think you ever really do properly leave this place.
UK news
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