Brooke Eby, diagnosed with ALS at 33, reflects on her unexpected journey to social media. Initially unaware of the illness, she faced a lengthy diagnostic odyssey. After finally receiving her diagnosis, the emotional burden left her numb and isolated. However, a pivotal moment at a friend's wedding reignited a sense of community and purpose. As she navigates her daily life with terminal illness, Eby leverages her platform on Instagram and TikTok to share her story and advocate for awareness, amassing nearly 400,000 followers who resonate with her candid experiences.
"I laid in bed for two months eating M&Ms... I feel like I was like Teflon... I was in freeze. No one could even ask me a question without me getting upset."
"I'm just sharing my story, and if that influences people to care, sure, I'll take that title."
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