OpenSNP, a fourteen-year-old genetic records repository, will cease operations and delete its data by April's end. The decision, according to co-founder Bastian Greshake Tzovaras, stems from increasing risks associated with genetic data amid the bankruptcy of 23andMe. Concerns grew regarding the potential sale of this sensitive information to companies lacking privacy commitments. The FTC has intervened, stressing that any future handling of 23andMe's data must honor previous privacy assurances, ensuring user rights are respected even amid the bankruptcy process.
The ultimate reason being that we think that the risk/benefit of having this type of data collection has shifted in face of the current authoritarian governments, but of course proximate it's been triggered by 23andMe going bankrupt and the fallout about data ownership.
Any bankruptcy-related sale or transfer involving 23andMe users' personal information and biological samples will be subject to the representations the company has made to users about both privacy and data security, and which users relied upon in providing their sensitive data to the company.
Collection
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