A recent statement from the Department of Health and Human Services (HHS) clarified that it will not develop an autism registry, contradicting NIH plans shared by Dr. Jay Bhattacharya. HHS will utilize existing datasets to enhance autism research rather than create new registries, amidst backlash from advocacy groups concerned about privacy. The NIH had proposed a plan that included extensive data collection, leading to disquiet among autism service providers. Approximately $50 million will be allocated for this research to deepen understanding of autism spectrum disorder's causes and improve treatment options.
HHS clarified they are not creating an autism registry; instead, they will use existing datasets to support research on autism causes and treatment.
The NIH's initial announcement regarding the creation of national disease registries led to privacy concerns and criticism from advocacy groups.
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