#patient-advocacy

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Medicine
fromwww.bbc.com
50 minutes ago

'My lonely start to adulthood with endometriosis'

A peer-led support group for women with gynaecological health conditions has been established to combat stigma and loneliness.
Healthcare
fromNextgov.com
2 days ago

Tech bills of the week: Improving maternal health; Expanding access for disabled Americans; and more

The Tech to Save Moms Act aims to improve maternal health outcomes through enhanced telehealth services and technology access for expecting mothers.
Law
fromABA Journal
2 weeks ago

Millions of Americans continue to lack meaningful access to justice. What can be done about it?

Millions of Americans face legal challenges without access to affordable legal assistance, highlighting a significant justice gap.
SF LGBT
fromwww.bbc.com
3 days ago

Trans woman leaves role with women's health charity

A trans woman resigned from a women's health charity amid criticism regarding her role and its implications for women's health advocacy.
#mental-health
fromwww.amny.com
6 days ago
Healthcare

AG demands reforms at NY-Presbyterian after investigation reveals mental health patients left without permission | amNewYork

Mental health
fromwww.bbc.com
2 days ago

'I didn't think I needed to be here' says woman with diabetes and depression

Managing type 1 diabetes can exacerbate mental health issues, leading to severe depression and feelings of worthlessness.
Mental health
fromFast Company
6 days ago

Why the future of mental healthcare is team-based

Team-based care improves mental health treatment outcomes by integrating multidisciplinary teams to address complex conditions effectively.
Healthcare
fromwww.amny.com
6 days ago

AG demands reforms at NY-Presbyterian after investigation reveals mental health patients left without permission | amNewYork

NewYork-Presbyterian must reform mental healthcare protocols and pay a $500,000 penalty after failing to protect vulnerable patients.
Public health
fromAxios
4 days ago

Finish Line: The quiet rise of "prescribing connection"

Social prescribing addresses health crises and broader issues like social isolation through diverse community programs and activities.
#gender-affirming-care
Public health
fromLGBTQ Nation
3 weeks ago

American Medical Association reaffirms support for trans health care after controversial statement - LGBTQ Nation

The AMA reaffirmed its support for gender-affirming care, clarifying that recent media reports misinterpreted its stance.
Healthcare
fromAdvocate.com
2 weeks ago

Doctors' group says American Medical Association didn't retreat on gender-affirming care for minors

The American Medical Association maintains its support for gender-affirming care despite claims of a policy shift.
Public health
fromLGBTQ Nation
3 weeks ago

American Medical Association reaffirms support for trans health care after controversial statement - LGBTQ Nation

The AMA reaffirmed its support for gender-affirming care, clarifying that recent media reports misinterpreted its stance.
Healthcare
fromAdvocate.com
2 weeks ago

Doctors' group says American Medical Association didn't retreat on gender-affirming care for minors

The American Medical Association maintains its support for gender-affirming care despite claims of a policy shift.
Travel
fromConde Nast Traveler
3 days ago

How Chronic Illness Changed the Way I Travel

Living with chronic illness requires careful management, especially while traveling, but life can still be joyful and full of possibilities.
Health
fromHarvard Gazette
2 days ago

Rural U.S. bears heaviest burden accessing dental care - Harvard Gazette

24.7 million Americans live in dental deserts, facing significant barriers to accessing specialized dental care, particularly in rural areas.
Non-profit organizations
fromLGBTQ Nation
3 days ago

HIV activists shout down Project 2025 author for freezing key HIV/AIDS funding - LGBTQ Nation

Protests erupted during Russell Vought's congressional testimony over delays in funding for PEPFAR, highlighting concerns about cuts to HIV/AIDS programs.
Cancer
fromNature
5 days ago

Improving cancer survival rates will require hard policy choices

Global cancer incidence is rising, necessitating early detection strategies and public education on risk factors.
fromwww.scientificamerican.com
3 days ago

Elizabeth Roboz Einsteinthe determined genius behind a multiple sclerosis breakthrough

Elizabeth Roboz Einstein's journey began on May 15, 1940, when she boarded the Conte di Savoia, an Italian steamliner, leaving behind her family in Hungary as World War II escalated. This voyage was not a luxury cruise but a desperate evacuation for many, including 600 Central European refugees fleeing the advancing German troops.
History
#healthcare
Healthcare
fromwww.theguardian.com
3 days ago

NHS patients should be able to write up their own medical records and not have to rely on Post-it notes | Will Parman

Patients with complex health needs struggle to communicate symptoms effectively, risking important information being overlooked during medical appointments.
fromFortune
3 days ago
Healthcare

'The Pitt' reveals why healthcare desperately needs a new front door | Fortune

Canada news
fromwww.aljazeera.com
5 days ago

Canada faces calls to rescind planned cuts to refugee healthcare scheme

Co-payments for the Interim Federal Health Program are seen as a denial of care for vulnerable refugees and asylum seekers in Canada.
Healthcare
fromwww.theguardian.com
3 days ago

NHS patients should be able to write up their own medical records and not have to rely on Post-it notes | Will Parman

Patients with complex health needs struggle to communicate symptoms effectively, risking important information being overlooked during medical appointments.
Healthcare
fromFortune
3 days ago

'The Pitt' reveals why healthcare desperately needs a new front door | Fortune

HBO Max's The Pitt highlights real challenges in emergency departments, emphasizing the need for reimagined patient access to healthcare.
Healthcare
fromCbsnews
1 week ago

Fighting for health care claim approvals

Insurance companies often delay or deny necessary medical treatments, causing significant emotional and physical distress for patients.
fromJezebel
5 days ago

ICE Is Ignoring Woman's Life-Threatening Ovarian Cyst-and Her Condition Is Getting Worse

For over a month, my office has been going back and forth with ICE officials about Andrea's condition. We have been ignored, put off, and frankly, lied to about the treatment she has received while in detention.
US politics
London politics
fromwww.bbc.com
5 days ago

How I overcame homelessness to help others

Darren Skeete, a former rough sleeper and addict, now helps others facing similar challenges in west London through a council service.
NYC LGBT
fromwww.bbc.com
5 days ago

'I was kicked out of bar because of my wheelchair'

Maddie Haining was removed from a nightclub due to her wheelchair being deemed a safety risk, which she called discrimination.
LGBT
fromLGBTQ Nation
5 days ago

New extreme GOP anti-trans bill will force doctors to help create a list of trans residents - LGBTQ Nation

Tennessee has passed a bill creating a registry of trans individuals and their gender-affirming care details, raising privacy concerns among experts.
Retirement
from24/7 Wall St.
5 days ago

Cancer Patient Paid Off Mortgage Early. Did She Make a Huge Mistake?

Paying off the mortgage early provided financial security for a cancer patient, despite friends suggesting otherwise.
Mental health
fromFast Company
3 days ago

For women, gender disparities in ADHD diagnoses can be deadly

Recent research indicates that girls with ADHD are often underdiagnosed, leading to significant mental health challenges.
Cancer
fromNature
5 days ago

Four rising stars shaping the future of cancer research

A new generation of cancer researchers is focused on improving diagnostics and treatments to enhance survival rates for cancer patients.
fromLos Angeles Times
5 days ago

Ex-UCLA doctor admits to sexually abusing five patients after previous conviction overturned

James Heaps, 70, pleaded guilty to 13 felonies, including multiple counts of sexual penetration of an unconscious person, and must register as a sex offender for life.
Law
US news
fromwww.npr.org
4 days ago

They counted on a rural dialysis unit to keep them alive. Then it closed

Rural healthcare services are declining, impacting patients like Mark Pieper who rely on dialysis for survival.
LGBT
fromLGBTQ Nation
1 week ago

Admin backs out of pro-trans settlements while hospitals start providing trans care again - LGBTQ Nation

Trans students' discrimination settlements are being terminated or altered, impacting protections and training in school districts.
Medicine
fromwww.bbc.com
1 day ago

'I'm in remission for the first time due to new cancer drug'

A woman with multiple sclerosis reached remission from myeloma after surpassing her prognosis of three to seven years, thanks to a new drug.
Healthcare
fromLos Angeles Times
2 days ago

California was warned of shocking hospice fraud. Inaction allowed problems to persist

California officials have failed to stop widespread hospice fraud despite promises of reform and ongoing investigations into the industry.
Mental health
fromPsychology Today
4 days ago

The Secret Advantage of Not Doing It Alone

Social support enhances performance, reduces stress, increases well-being, and can be experienced through imagination and helping behaviors.
#endometriosis
Medicine
fromwww.bbc.com
3 days ago

Podcaster advocating for endometriosis awareness

A woman from Kenilworth advocates for endometriosis awareness after struggling for diagnosis and facing dismissal from medical professionals.
Medicine
fromwww.bbc.com
5 days ago

'I'm not being listened to' - new health plan launched as women say they are still ignored

Zoe Trafford's experience highlights ongoing issues in women's healthcare, particularly regarding endometriosis and the need for better listening by medical professionals.
Medicine
fromwww.bbc.com
3 days ago

Podcaster advocating for endometriosis awareness

A woman from Kenilworth advocates for endometriosis awareness after struggling for diagnosis and facing dismissal from medical professionals.
Medicine
fromwww.bbc.com
5 days ago

'I'm not being listened to' - new health plan launched as women say they are still ignored

Zoe Trafford's experience highlights ongoing issues in women's healthcare, particularly regarding endometriosis and the need for better listening by medical professionals.
Public health
fromThe Nation
1 week ago

Public Health Needs to Get Off the Laptop and Into the Streets

Transformational experiences in South Africa with TAC emphasized the importance of community engagement and effective communication in health education.
Right-wing politics
fromTruthout
3 weeks ago

Some States Are Boosting Reproductive Health Access, Maternal Health, Child Care

The U.S. Senate upheld a ban on abortion care for veterans, while states are enacting various reproductive health laws and restrictions.
Healthcare
fromwww.amny.com
3 days ago

Op-Ed | Albany should reject 340B expansion legislation and focus on patients | amNewYork

CancerCare advocates for transparency in the 340B Drug Pricing Program to prioritize patient benefits and reject harmful budget proposals.
Medicine
fromFortune
3 days ago

Two physicians on ending the waiting-room era: bring care home | Fortune

In-home dialysis improves health outcomes for patients with chronic diseases, offering convenience and support through technology and virtual care.
NYC politics
fromGothamist
3 weeks ago

NYC home health aides press Mamdani to back bill ending 24-hour shifts

Home health aides in New York City are advocating for the 'No More 24 Act' to limit shifts to 12 hours.
Mental health
fromPsychology Today
6 days ago

When Trauma Awareness Stops at the Hospital Door

Chronic health conditions significantly impact psychological well-being, yet healthcare providers often neglect this aspect for both patients and themselves.
Left-wing politics
fromPsychology Today
3 weeks ago

How the Battle for Affordable Care Became a Culture War

The Affordable Care Act's passage and implementation faced significant political and cultural challenges, shaping national discourse for years to come.
from48 hills
3 days ago

Hundreds rally against health care cuts - 48 hills

Maria Elena Healy, a registered nurse at Laguna Honda, stated, 'I am just one of the few who have been laid off. They are eliminating an entire department. These people will no longer have the specialty nursing care that we provide.'
Healthcare
Medicine
fromThe Atlantic
4 days ago

How to Fix a Diagnosis Crisis

Diagnostic errors are common, affecting 5% of Americans annually, leading to significant disability and death.
Cancer
fromFortune
2 weeks ago

Cancer's grim calculus for the young: their insurance status can determine how long they survive | Fortune

Insurance status significantly impacts cancer survival rates among young adults, with private insurance leading to better outcomes than Medicaid or no insurance.
Healthcare
fromMedium
3 days ago

The trust gap in healthcare AI isn't about the AI

Trust in healthcare AI is established in the first 30 seconds of interaction, not through model improvements.
Medicine
fromPsychology Today
5 days ago

How Cognitive and Social Forces Shape Medical Decisions

Medical decisions are influenced by how options are framed, presented, and the dynamics of the situation.
Healthcare
fromKqed
4 days ago

UC Patient Care and Service Workers Plan Open-Ended Strike Starting Next Month | KQED

University of California workers plan a strike due to unmet demands for fair wages and affordable housing amid rising costs.
fromPsychology Today
6 days ago

How Community-Based Healthcare Builds Engagement

Most people leave doctor visits with prescriptions, but still feel unsure—instructions make sense, but no one asks about their life. In contrast, when a provider knows your name, remembers your story, and explains care in a way that fits you, the experience feels different—and that difference matters.
Healthcare
fromIndependent
6 days ago

'Living with a rare disease like Hurler syndrome hasn't held me back - it's given me the best life'

One in every 17 people has a rare disease - I'm one of those people. I have mucopolysaccharidosis type I. It's more commonly known as 'Hurler syndrome', but even when I use that term, no one I meet has ever heard of it.
Medicine
Medicine
fromABC7 Los Angeles
5 days ago

PA nurse gives back to NICU that treated her 30 years ago

Allyson Smyth works in the NICU where she was treated as a newborn, now mentored by her former caregiver, Karen Lenker.
Healthcare
fromwww.amny.com
5 days ago

Op-ed | State Senate's drug discount plan leaves the poorest patients behind | amNewYork

Policymakers must ensure the 340B Drug Discount Program effectively supports low-income patients amid tightening Medicaid funds.
Healthcare
fromwww.amny.com
6 days ago

Op-ed | To tackle affordability, we must have fair hospital pricing | amNewYork

Two out of three New Yorkers delayed healthcare due to costs, with hospital price inflation exceeding 100% since 2009.
fromwww.bbc.com
1 month ago

Police probe breast cancer treatment allegations

A report last year found unnecessary surgeries were carried out, cancers were missed and poor standards of care were delivered at the University Hospital of North Durham and Darlington Memorial Hospital. CDDTF said it wanted to support the patients it had let down, including by offering access to psychological support, and to ensure they knew how to make a claim or raise concerns with police.
Cancer
Healthcare
fromTruthout
2 weeks ago

Nurses Forge Alliances to Protect Patients From Trump's Immigration Crackdown

Nurses demand the abolition of ICE and improved patient rights protections in healthcare settings.
Mental health
fromPsychology Today
1 month ago

Living a Great Life With an Invisible Disability

Invisible disabilities are medically real conditions affecting millions, requiring accommodation despite lacking visible signs, and deserve recognition without judgment or assumption of fraud.
Science
fromNature
2 months ago

My mission to make life more user friendly for the disability community

Josh Miele is a blind scientist and adaptive-technology inventor who uses lived experience, activism, and rule-breaking to advance accessibility and inclusive design.
fromInside Higher Ed | Higher Education News, Events and Jobs
1 month ago

Health Care Groups Form Coalition to Fight Loan Caps

The loan limits-which were prompted by congressional legislation and fleshed out through a contentious rule-making process -cap the amount a graduate student can borrow based on the type of program they enroll in. If their program is deemed "professional," they can borrow up to $50,000 a year or $200,000 total; meanwhile, students in programs labeled "graduate" can only take out half that-$20,500 a year or $100,000 total. Under the proposed regulations, only 11 degree programs are considered professional.
Higher education
fromwww.theguardian.com
2 months ago

Assisted dying backers accused of bullying over threat to bypass Lords

Leadbeater said MPs were angry that a small handful of peers could talk out a bill that had been backed by a majority in the Commons. I think the government should listen to that. I think they've got a duty to listen to that, she said. I worry about the reputation of the House of Lords, who nobody elected. And they should not have the power to try and block something that has been voted for by people who were democratically elected, she said.
UK politics
Mindfulness
fromAdvocate.com
2 months ago

When community care became a threat

Northern communities cultivate unassuming, resilient care through small gestures, shared responsibility, and mutual aid shaped by harsh winters and neighborliness.
Women
fromFast Company
2 months ago

Can PR help solve the women's health crisis?

Women must advocate, ask the right questions, and use storytelling, education, and funding to improve access to life-saving health care and innovations.
Design
fromFast Company
1 month ago

The biggest barrier to accessibility is not usability

Accessible product adoption fails primarily due to shame and stigma rather than functional deficiencies; successful design requires dignity and emotional appeal alongside technical functionality.
LGBT
fromLGBTQ Nation
2 months ago

How AIDS activists revolutionized modern-day patients' rights for everyone - LGBTQ Nation

ACT UP combined confrontational public protests with inside institutional engagement to accelerate drug approval and center patients' rights during the AIDS crisis.
fromwww.housingwire.com
2 months ago

Long-term care advocates speak out on regulatory rollbacks

Industry lawsuits quickly blocked most of the regulation, with two federal courts ruling that Medicare exceeded its authority. Following the 2024 elections, Congress barred implementation of the standards before 2034. Last month, the Centers for Medicare and Medicaid Services (CMS) repealed the rule entirely. Hunter called the move devastating with advocates saying it signals a retreat from oversight. It's clear (CMS) has no interest in ensuring adequate staffing, said Sam Brooks of the National Consumer Voice for Quality Long-Term Care.
Public health
Healthcare
fromMedCity News
1 month ago

Employer Groups Applaud Bill that Aims to Spur Competition in Healthcare - MedCity News

The Healthy Competition for Better Care Act bans anticompetitive healthcare contracts to increase competition and reduce costs for patients and employers.
Public health
fromTruthout
2 months ago

Illinois Had Massive Gaps in Mental Health Coverage. We Organized to Fix It.

Illinois law mandates fairer insurer payments to mental health and substance-abuse providers, expanding access and reducing ghost networks for roughly 2.5 million people.
Mental health
fromPsychology Today
2 months ago

The Health Care Empathy Dilemma

Different empathy types affect caregivers differently: compassion empathy protects against burnout while contagion empathy increases burnout risk by merging others' emotions.
Healthcare
fromwww.amny.com
1 month ago

Op-Ed | Open the door to better care by expanding scope of practice | amNewYork

New York should expand medical assistants' scope of practice to administer vaccinations under supervision to address healthcare workforce shortages and improve patient care access.
fromMedscape
2 months ago

Is Assisted Death Always Peaceful? We Simply Don't Know

For decades, the gold standard for the coma-induction phase of euthanasia was thiopental. It was swift, reliable, and highly concentrated and rapidly induced a deep coma. In 2011, however, the European Union banned the export of drugs used for capital punishment, including thiopental. In the wake of the ban, manufacturers withdrew or tightly controlled supplies to avoid association with executions, making the drug increasingly difficult to obtain. "Thiopental is very difficult to get now," Horikx said.
Medicine
fromNonprofit Quarterly | Civic News. Empowering Nonprofits. Advancing Justice.
1 month ago

After Years of Waiting, She Wanted to Start Gender-Affirming Care. Politics Interfered. | Nonprofit Quarterly | Civic News. Empowering Nonprofits. Advancing Justice.

I'm a pub cook. I don't make a lot of money. And I can't do insurance through my spouse - so Medicaid it is. I just want a doctor to help guide me with a medical thing. How is it crazy to want that?
Healthcare
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