#sickle-cell-disease

#sickle-cell-disease

For a decade after its discovery, CRISPR gene editing was stuck on the cusp of transforming medicine. Then, in 2023, scientists started using it on sickle-cell disease, and Victoria Gray, a patient who lived with constant pain-like lightning inside her body, she has said -got the first-ever FDA-approved CRISPR gene-editing treatment. Her symptoms vanished; so did virtually everyone else's in the clinical trial she was a part of.

There hasn't been prior work that shows if timely pain relief can impact important patient-centered outcomes like admission to the hospital.

"Hi, and welcome. My name is Xaia, and I'm your mental health ally. How can I help?" The virtual reality experience provided comfort and relief for users.

People living with sickle cell disease experience significantly poorer care compared to those with cystic fibrosis, due to inadequate investment and attention over the years.

There is a general consensus that the majority of people spoken to are very reluctant to call the ambulance service unless it is the only and last resort and the pain is so bad they have no excuse but to go hospital.